When Foundation One was done on my cancer several months into my Stage IV diagnosis we discovered that I have a rare mutation in breast cancer called KEAP1. A ridiculously low single digit percentage of women with breast cancer have this mutation, something like 2%. In Lung and Stomach cancer people with this mutation do... Continue Reading →
Word Salad – BCAM 2021 – Updated
When you get a cancer diagnosis your certain to get a lot of questions from people relating to your diagnosis. Not only the details of your cancer: size, location, type, stage, grade. But people also seem to be inquisitive about other things about you. What you eat, do you smoke, do you exercise, what supplements... Continue Reading →
Fire and Brimstone – BCAM 2021
Here we are in October again. Dreading living through it. Dreading writing about it. I feel my eyes dart around stores like lasers looking for a pink ribbon display I can flex my Sphinx Gate eye torpedos at al la Neverending Story. (Ever watch that part as an adult, wow, surprised that set made it... Continue Reading →
Patient Advocacy – Reblog
A fellow blogger I follow wrote something utterly fantastic, she was able to convey something happening in the field of advocacy and the cancer community at large that needs to be addressed that I don't think I could have with such clarity. Please follow Ilene from Cancer Bus https://cancerbus.com/ and read her article there titled:... Continue Reading →
Month to Month Living: Living with Stage IV Cancer – Updated
People know that along with the emotional toll cancer takes there also physical hoops you must contend with to try to stay ahead of a disease that is relentless. Many people are curious what I have to do month to month in dealing with Stage 4 breast cancer/MBC so I thought I'd outline what a... Continue Reading →
Toast
When I received my initial breast cancer diagnosis my breast surgeon gave me a card and a bunch of information and suggested different websites to go for support. I know how I felt getting that information, I had so many questions for everybody....doctors, nurses, anyone I could find. But mostly I wanted to hear from... Continue Reading →
Reboot
When you first hear the word *cancer* it's like an overload to your system. I told one sister, it almost feels like being reborn only backwards. You relearn everything. It's like that famous giant windows blue screen everybody hates intruding rudely into your path bathing your face in shades of azure out of nowhere. "Update... Continue Reading →
Feelings, Whoa Whoa Whoa, Feelings
The ups and downs and down downs of cancerland can have one desiring to escape its clutches. I haven't written as much as I used to here on this blog. Having celebrated my 100th blog post not too long ago its amazing to go back and read some of my past thoughts and feelings. Some... Continue Reading →
Wild Thing
I think I've come to an important milestone for me and I just wanted to share. I've decided to accept where I am right now and try to stop referencing a long series of very unfortunate events. I can't change what's happened and reliving it is really like torture. Why not let myself outta of... Continue Reading →
Don’t Lose My Number
Walking onto the oncology floor pre-pandemic was strange in that people who were personally complete strangers knew my name. Everyone it seems did. After awhile I didn't even have to walk up to the desk to check in as time went on. They just saw me coming through the door and told me to take... Continue Reading →